Program
Wednesday, 16th October 2024
Reception desk times:
Pre-Congress Workshops 08.00 – 08.30
Congress delegates 10.00 – 19.00
08.30 – 12.30 Pre-congress Workshops
12.30 – 13.30 Lunch
13.30 – 16.30 Pre-congress Workshops
Pre-congress Workshops:
Course I: Perinatal PPC
Coordinators: Brian S. Carter, Maria Azucena Niño Tovar, Tanja Pedersen
San Bernardino Room (Ground Floor)
Course II: Communicating Bad News
Coordinators: Justin N. Baker, Esther H. Ammon, Michelle R. Brown, Alexis Morvant
Room A (1st floor)
Course III: The Management of Pain and Troublesome Symptoms in PPC
Coordinators: Poh Heng Chong, Ross Drake, Michelle Koh
San Francesco Room (Ground Floor)
Course IV: Difficult Choices: Bioethical Strategy
Coordinators: Joana Mendes, Marie Friedel, Daniel Garros
Jacopone da Todi Room (Ground Floor)
17.30 – 20.30 Opening ceremony
Auditorium (Basement level)
• Welcomes – Silvia Lefebvre D’Ovidio, Franca Benini, Ann Goldman, Brian S. Carter
• Keynote lecture: The Roots of PPC – Joanne Wolfe
• Presentation Vittorio Ventafridda Award
• Keynote Lecture : The Present Day – Ana Lacerda
• Presentation Mauro Sentinelli Scholarships
• Keynote Lecture : Future Horizons – Sophie Bertaud, Victoria Salvo, Elizabeth Seashore (Young Professional Committee)
• Young Researchers Award presented by the Vlček Family Foundation
• Entertainment Interlude
• Icebreaker
Thursday, 17th October 2024
Reception opens at 08.00 a.m.
08.30 – 09.00 Plenary: Gaining insights
• AI and Robotics in PPC – Alessandro Masserdotti
09.00 – 10.30 Plenary: Pushing the boundaries of PPC
Moderators: Brian S. Carter, Danai Papadatou
• High Tech: an Opportunity or a Limit? – Daniel Garros
• Extreme Preterm Neonates and Perinatal PPC- Elvira Parravicini
• • Transitional Care of Young Adults: for Everyone? – Ricardo Martino Alba
10.30 – 10.45 Auditorium (Basement Level)
Vlček Family Foundation Young Researcher Award-1st prize winning abstract
Cultural differences in shared decision-making in pediatric palliative care – Luca Nicot
10.45 – 11.15 Coffee break
11.15 – 12.15 Oral Abstract presentation session
Auditorium (Basement Level)
Working session 1: Communication
Moderators: Justin N. Baker, Jared Rubenstein
• Beyond illness: a qualitative exploration of talking about the future in pediatrics with IMPACT – Julie Brunetta
• Identification of age-appropriate ACP communication in children with chronic medical conditions – Leonie la Rondelle
• Compassionate communication with families during evaluation for death by neurologic criteria – Regina Okhuysen-Cawley
• Parents communication with a child with Juvenile Neuronal Ceroid Lipofucinosis about the diagnosis – Torun Marie Vatne
San Francesco Room (Ground Floor)
Working session 2: Caregivers and family
Moderators: Stefan J. Friedrichsdorf, Huda Abu-Saad Huijer
• Evaluating PPI activities within a paediatric palliative care research centre – Laura Barrett
• Critical and often missed steps in launching advance care planning for youth: parental perspectives – Lucie Hrdličková
• Interdisciplinary collaboration in pediatric palliative care: perceived barriers and facilitators – Maureen Kemna
• Understanding the needs of Pediatric Palliative caregivers in Washington, USA – Nikhita Vaddineni
Room A (1st floor)
Working session 3: Bereavement 1
Moderators: Anna Garchakova, Ulrika Kreicbergs
• Working with bereaved parents to develop digital grief resources to help staff and bereaved parents – Rebecca Candon/Breffni McGuinness
• Bereaved parents’ decision-making about location of end-of-life care for children – Ashleen Crowe
• Messages from heaven: unexplainable experiences among bereaved parents- Eva De Clercq
• Bereaved parents’ experiences of paediatric end-of-life care: a UK multi-site qualitative study – Julia Hackett
12.15 – 13.30 Lunch and Poster visit
13.30 – 15.00 Young Professionals Plenary: Diversity, Equity and Inclusion in PPC
Moderators: Sophie Bertaud, Elizabeth Seashore
• Racism, Ethics, and Palliative care – Jonathan Koffman
• Honouring Diverse Cultural and Religious Practices – Joe El Khoury
• Equity and the Delivery of PPC in Low and Middle-Income Countries – Julia Downing
15.00 – 16.15 Poster visit
16.15 – 17.15 Oral Abstract presentation session
Auditorium (Basement Level)
Working session 4: Young Professional Session
Moderators: Sophie Bertaud, Victoria Salvo
• Parent and professional experiences of 24/7 paediatric end-of-life care: shining a light on inequity – Laura Barrett
• Transformed by song: The impact of music on adolescents and young adults living with advanced cancer – Verna Hendricks-Ferguson
• Breaking barriers: access to pain medicines for paediatric palliative care worldwide – Julia Downing
• Rapid review of patient and public involvement work with parents of children with serious illness – Pru Holder
San Francesco Room (Ground Floor)
Working session 5: The importance of Team
Moderators: Poh Heng Chong, Daniel Garros
• Training teams in pediatric advance care planning: transfer of knowledge and communication skills – Marijanne Engel
• Resources required to provide neonatal palliative care: Supporting the nursing workforce – Alexandra Mancini-Smith
• Successful implementation of a Pediatric Palliative Care and Hospital at Home Program – Andres Piolatti-Luna
• Collaborative working improves access to paediatric palliative care – Joanna Woolley
Room A (1st floor)
Working session 6: Miscellaneous
Moderators: Mercedes Bernadá, Lorna Fraser
• Systemic development of Paediatric Palliative Care in the Czech Republic: Lesson-drawing – Jiri Krejci
• Impact of a Pediatric Palliative Care program on regional children’s healthcare utilization and cost – David Lawrence Lysecki
• Bereavement in pediatrics: The experience of the nurses of an Italian pediatric hospital – Federico Pellegatta
• State-of-Play in Pediatric Palliative Care in Luxembourg: An exploratory mixed methods study – Micha Massaad
17.30 – 18.30 Focus Sessions
Auditorium (Basement Level)
• Self-compassion, Growth and Development for Healthcare Professionals in PPC – Jared Rubenstein
Room A (1st floor)
• Shared Care Planning – Why, When, Where – Sergi Navarro Vilarrubí
San Francesco Room (Ground Floor)
• Palliative Sedation: When and How – Marco Bolognani
Friday, 18th October 2024
Reception opens at 08.00 a.m.
08.30 – 09.00 Plenary: Gaining insights
• The Use of Telephone Interview for Emergencies at Home – María Avilés Martínez
09.00 – 10.30 Plenary: Using Assessment Tools in PPC
Moderators: Huda Abu-Saad Huijer, Poh Heng Chong
• Quality of Care Assessment Tools – Prasanna Ananth
• Using Tools for Outcome Measurement in PPC – Richard Harding
• Opportunities and Limits – Lorna Fraser
10.30 – 11.00 Coffee break
11.00 – 12.00 Oral Abstract presentation session
Auditorium (Basement Level)
Working session 7: Pain and severe discomfort – identification and control
Moderators: Stefan J. Friedrichsdorf, Joe El Khoury
• Advancing pediatric pain management: Global comfort promise successes in Latin America – Ximena Garcia-Quintero
• Transforming pediatric palliative practice: The comfort promise initiative for reducing needle pain – Gezy Giwangkancana
• Shedding light on sleep: evaluating diagnostic measures for children with life-limiting conditions – Larissa Kubek
• Neuro-irritability: The great unknown – Anna Mercante
San Francesco Room (Ground Floor)
Working session 8: Tools and Technology
Moderators: Ross Drake, Richard Harding
• A novel co-designed tool to support CPC providers worldwide explore and utilize their service data -Laura Dale-Harris
• Virtual Reality (VR) in Palliative Care within home healthcare for children and adolescents – Daniel Kemppi
• Quality of care on an inpatient pediatric palliative care unit – Pia Schmidt
• The use of social media for sharing information on ppc needs: a social media analysis – Sofia Germinario
Room A (1st floor)
Working session 9: Siblings, parents and Family
Moderators: Renée McCulloch, Danai Papadatou
• Provision of psychological support for siblings of seriously ill children from parental perspective – Grazina Kokesova Kleinova
• Maternal role in caring for children with severe cognitive impairment in pediatric palliative care – Anna Santini
• Changing focus: parents reflecting on hope during hospice through photovoice – Allie Superdock
• MiniSIBS, a intervention supporting preschool siblings of children with life limiting disorders – Torun Marie Vatne
12.00 – 13.30 Lunch and Poster visit
13.30 – 14.30 Oral Abstract presentation session
Auditorium (Basement Level)
Working session 10: Survey and systematic reviews
Moderators: Julia Downing, Ross Drake
• Nationwide 24/7 Paediatric Palliative Care in Denmark. Data from 2016-2023 – Maja Abitz
• Survey of pediatric intensive care team professionals regarding pediatric palliative care – Mercedes Bernadá
• Factors affecting child development in the context of serious illness: a scoping review – Leonie la Rondelle
• Specialized Palliative Care in inherited metabolic diseases – a MetabERN survey – Anja Lee
San Francesco Room (Ground Floor)
Working session 11: Miscellanous 2
Moderators: Ana Lacerda, Joanne Wolfe
• The importance of specialized palliative care on pediatric cancer patients’ choice of place of death – Thea Marie Traun Andersen
• Pediatric Palliative Care and Emergency Department: how taking charge changes admissions – Valentina Folgheraiter
• Coming of age: Development of a pediatric palliative care program in the standard-of-care era – David Lawrence Lysecki
• Mapping trajectories of care in the last year of life in cardiovascular complex chronic conditions – Ashley Ridley
Room A (1st floor)
Working session 12: End of life care
Moderators: Justin N. Baker, Joana Mendes
• Professionals’ experiences of delivering paediatric end-of-life care: a multi-site qualitative study – Julia Hackett
• Health and social care professional views on decision-making for place of a child’s end-of-life care – Rachel McCauley
• Compassionate Extubation at Home (CEAH) in Paediatric Palliative Care: A case series – Mei Chan Grace Ng
• Complex chronic conditions (CCCs) vs. life-limiting conditions (LLCs)…how do these lists compare? – Samantha Smith
14.30 – 15.30 Poster visit
15.30 – 17.00 Plenary: Managing Serious Illness in the Home
Moderators: Mercedes Bernadá, Anna Garchakova
• Pain and Symptom Management – Renée McCulloch
• Support for Family Members and Strategies for Engaging the Community – Ulrika Kreicbergs
• End-of-Life Care – Ricardo Martino Alba
17.00 – 17.30 Closing Ceremony
• Conclusions – Ann Goldman & Brian Carter
• Thanks & Arrivederci – Franca Benini & Silvia Lefebvre D’Ovidio
