Program
Wednesday, 16th October 2024
Reception desk times:
Pre-Congress Workshops 08.00 – 08.30
Congress delegates 10.00 – 19.00
08.30 – 12.30 Pre-congress Workshops
12.30 – 13.30 Lunch
13.30 – 16.30 Pre-congress Workshops
Pre-congress Workshops:
Course I: Perinatal PPC
Coordinators: Brian S. Carter, Maria Azucena Niño Tovar, Tanja Pedersen
Course II: Communicating Bad News Coordinators: Justin N. Baker, Esther H. Ammon, Michelle R. Brown, Alexis Morvant
Course III: The Management of Pain and Troublesome Symptoms in PPC Coordinators: Poh Heng Chong, Ross Drake, Michelle Koh
Course IV: Difficult Choices: Bioethical Strategy
Coordinators: Joana Mendes, Marie Friedel, Daniel Garros
17.30 – 19.30 Opening ceremony
- Welcomes
- Keynote lecture: The Roots of PPC – Joanne Wolfe
- Keynote Lecture : The Present Day – Ana Lacerda
- Keynote Lecture : Future Horizons – Sophie Bertaud, Victoria Salvo, Elizabeth Seashore (Young Professional Committee)
- Young Researchers Award presented by the Vlček Family Foundation
- Vittorio Ventafridda Award
19.30 – 20.30 Icebreaker Reception
Reception opens at 08.00 a.m.
08.30 – 09.00 Plenary: Gaining insights
• AI and Robotics in PPC – Alessandro Masserdotti
09.00 – 10.30 Plenary: Pushing the boundaries of PPC
Moderators: Brian S. Carter, Danai Papadatou
• High Tech: an Opportunity or a Limit? – Daniel Garros
• Extreme Preterm Neonates and Perinatal PPC- Elvira Parravicini
• Transitional Care of Young Adults – Julie Hauer
10.30 – 10.45 Young researcher Award 1st prize
10.45 – 11.15 Coffee break
11.15 – 12.15 Oral Abstract presentation session (3 in parallel)
Auditorium (Basement Level)
Working session 1: Communication
Moderators:
• Beyond illness: a qualitative exploration of talking about the future in pediatrics with IMPACT – Julie Brunetta
• Identification of age-appropriate ACP communication in children with chronic medical conditions – Leonie la Rondelle
• Compassionate communication with families during evaluation for death by neurologic criteria – Regina Okhuysen-Cawley
• Parents communication with a child with Juvenile Neuronal Ceroid Lipofucinosis about the diagnosis – Torun Marie Vatne
San Francesco Room (Ground Floor)
Working session 2: Caregivers and family
Moderators:
• Evaluating PPI activities within a paediatric palliative care research centre – Laura Barrett
• Critical and often missed steps in launching advance care planning for youth: parental perspectives – Lucie Hrdličková
• Interdisciplinary collaboration in pediatric palliative care: perceived barriers and facilitators – Maureen Kemna
• Understanding the Needs of Pediatric Palliative Caregivers in Washington, USA – Nikhita Vaddineni
Room A (1st floor)
Working session 3: Bereavement 1
Moderators:
• Working with bereaved parents to develop digital grief resources to help staff and bereaved parents – Rebecca Candon
• Bereaved parents’ decision-making about location of end-of-life care for children – Ashleen Crowe
• Messages from heaven: unexplainable experiences among bereaved parents- Eva De Clercq
• Bereaved parents’ experiences of paediatric end-of-life care: a UK multi-site qualitative study – Julia Hackett
12.15 – 13.30 Lunch and Poster visit
13.30 – 15.00 Young Professionals Plenary: Diversity, Equity and Inclusion in PPC
Moderators: TBD
• Racism, Ethics, and Palliative care – Mehrunisha Suleman
• Honouring Diverse Cultural and Religious Practices – Joe El Khoury
• Equity and the delivery of PPC in low and middle-income countries – Julia Downing
15.00 – 16.15 Poster visit (coffee station)
16.15 – 17.15 Oral Abstract presentation session (3 in parallel)
Auditorium (Basement Level)
Working session 4: Young Professional Session
Moderators:
• Parent and professional experiences of 24/7 paediatric end-of-life care: shining a light on inequity – Laura Barrett
• Transformed by Song: The Impact of Music on Adolescents and Young Adults Living With Advanced Cancer – Robert Bennett
• Breaking Barriers: Access to Pain Medicines for Paediatric Palliative Care Worldwide – Julia Downing
• Rapid review of patient and public involvement work with parents of children with serious illness – Pru Holder
San Francesco Room (Ground Floor)
Working session 5: The importance of Team
Moderators:
• Training teams in pediatric advance care planning: transfer of knowledge and communication skills – Marijanne Engel
• Resources required to provide neonatal palliative care: Supporting the nursing workforce – Alexandra Mancini-Smith
• Succesful implementation of a Pediatric Palliative Care and Hospital at Home Program – Andres Piolatti-Luna
• Collaborative working improves access to paediatric palliative care – Joanna Woolley
Room A (1st floor)
Working session 6: Miscellaneous
Moderators:
• Systemic Development of Paediatric Palliative Care in the Czech Republic: Lesson-Drawing – Jiri Krejci
• Impact of a pediatric palliative care program on regional children’s healthcare utilization and cost – David Lawrence Lysecki
• Networks in Developing Palliative Care for Children – Joan Marston
• State-of-Play in Pediatric Palliative Care in Luxembourg: An Exploratory Mixed Methods Study – Micha Massaad
17.15 – 17.30 Room Change
17.30 – 18.30 Focus Sessions (in parallel)
• Shared Care Planning – Why, When, Where – Sergi Navarro Vilarrubí
• Palliative Sedation: When and How – Marco Bolognani
• Self-compassion, Growth and Development for Healthcare Professionals in PPC – Jared Rubenstein
Reception opens at 08.00 a.m.
08.30 – 09.00 Plenary: Gaining insights
• The Use of Telephone Interview for Emergencies at Home – María Avilés Martínez
09.00 – 10.30 Plenary: Using Assessment Tools in PPC
Moderators: Huda Abu-Saad Huijer, Poh Heng Chong
• Quality of Care Assessment Tools – Prasanna Ananth
• Using Tools for Outcome Measurement in PPC – Richard Harding
• Opportunities and Limits – Lorna Fraser
10.30 – 11.00 Coffee break
11.00 – 12.00 Oral Abstract presentation session (3 in parallel)
Auditorium (Basement Level)
Working session 7: Pain and severe discomfort – identification and control
Moderators:
• Advancing Pediatric Pain Management: Global Comfort Promise Successes in Latin America – Ximena Garcia-Quintero
• Transforming Pediatric Palliative Practice: The Comfort Promise Initiative for Reducing Needle Pain – Gezy Giwangkancana
• Shedding Light on Sleep: Evaluating Diagnostic Measures for Children with Life-Limiting Conditions – Larissa Kubek
• Neuro-irritability: The Great Unknown – Anna Mercante
San Francesco Room (Ground Floor)
Working session 8: Tools and Technology
Moderators:
• A novel co-designed tool to support CPC providers worldwide explore and utilize their service data -Laura Dale-Harris
• Virtual Reality (VR) in Palliative Care within Home Healthcare for Children and Adolescents – Daniel Kemppi
• Quality of care on an inpatient pediatric palliative care unit – Pia Schmidt
• The Use of Social Media for Sharing Information on PPC Needs: A Social Media Analysis – Sofia Germinario
Room A (1st floor)
Working session 9: Siblings, parents and Family
Moderators:
• Provision of psychological support for siblings of seriously ill children from parental perspective – Grazina Kokesova Kleinova
• Maternal role in caring for children with severe cognitive impairment in pediatric palliative care – Anna Santini
• Changing Focus: Parents Reflecting on Hope During Hospice through Photovoice – Allie Superdock
• MiniSIBS, a intervention supporting preschool siblings of children with life limiting disorders – Torun Marie Vatne
12.00 – 13.30 Lunch and Poster visit
13.30 – 14.30 Oral Abstract presentation session (3 in parallel)
Auditorium (Basement Level)
Working session 10: Survey and systematic reviews
Moderators:
• Nationwide 24/7 Paediatric Palliative Care in Denmark. Data from 2016-2023 – Maja Abitz
• Survey of pediatric intensive care team professionals regarding pediatric palliative care – Mercedes Bernadá
• Factors affecting child development in the context of serious illness: a scoping review – Leonie la Rondelle
• Specialized Palliative Care in Inherited Metabolic Diseases – a MetabERN survey – Anja Lee
San Francesco Room (Ground Floor)
Working session 11: Miscellanous 2
Moderators:
• The importance of specialized palliative care on pediatric cancer patients’ choice of place of death – Thea Marie Traun Andersen
• Pediatric Palliative Care and Emergency Department: how taking charge changes admissions – Valentina Folgheraiter
• Coming of age: Development of a pediatric palliative care program in the standard-of-care era – David Lawrence Lysecki
• Mapping trajectories of care in the last year of life in cardiovascular complex chronic conditions – Ashley Ridley
Room A (1st floor)
Working session 12: End of life care
Moderators:
• Professionals’ experiences of delivering paediatric end-of-life care: a multi-site qualitative study – Julia Hackett
• Health and social care professional views on decision-making for place of a child’s end-of-life care – Rachel McCauley
• Compassionate Extubation at Home (CEAH) in Paediatric Palliative Care: A Case Series – Mei Chan Grace Ng
• Complex chronic conditions (CCCs) vs. life-limiting conditions (LLCs)…how do these lists compare? – Samantha Smith
14.30 – 15.30 Poster visit (coffee station)
15.30 – 17.00 Plenary: Managing Serious Illness in the Home
Moderators: Mercedes Bernadá, Anna Garchakova
• Pain and Symptom Management – Renée McCulloch
• Support for Family Members and Strategies for Engaging the Community – Ulrika Kreicbergs
• End-Of-Life Care – Ricardo Martino Alba
17.00 – 17.30 Closing Ceremony
• Conclusions – Ann Goldman & Brian Carter
• Thanks & Arrivederci – Franca Benini & Silvia Lefebvre D’Ovidio
