Pre-Congress Workshops

In response to popular demand, four pre-congress workshops on different themes of significant interest have been scheduled.  The workshops, lead by eminent international paediatric palliative care experts, will run simultaneously on Wednesday the 16^th October 2024 from 8.30 to 16.30.

Please note that pre-conference workshops can only be booked online congress registration page in connection with the registration for the congress.

Participation in the pre-congress workshops will be limited to a minimum of 30 and a maximum of 80 participants, places will be allocated on a first come first-served basis.

Registration for the pre-congress workshops closes on 30^th September 2024

Fees for Participants include:

• Attendance in the selected workshop
• Refreshments and lunch

IT’S NOT POSSIBLE TO CHANGE PRE-CONGRESS WORKSHOP ON THE DAY OF THE CONGRESS

Title: Perinatal PPC 
Date: 16^th October 2024
Duration: 1-day (08.30 -16.30)
Coordinator: Brian S. Carter
Co presenters: Maria Azucena Niño Tovar, Tanja Pedersen
Min Capacity: 30 pers. Max Capacity: 80 pers.
Description: We will present materials that reflect the place of perinatal palliative care in three different countries and settings: Norway, Colombia and North America. In particular we will look at the past and present of this growing work within pediatric palliative care in these countries and project ideas and interact with the attendees about current and future issues for the parents and the fetus or newborn.

Title: Communicating bad news
Date: 16^th October 2024
Duration: 1-day (08.30 -16.30)
Coordinator: Justin N. Baker
Co presenters: Esther H. Ammon, Michelle R. Brown, Alexis Morvant
Min Capacity: 30 pers. Max Capacity: 80 pers.
Description: This Pediatric Palliative Care Communication Workshop is designed to equip healthcare professionals with the essential skills needed to navigate complex and sensitive conversations with children facing life-limiting illnesses and their families. This workshop, rooted in the principles of patient-centered care, aims to enhance communication strategies, foster empathy, drive compassion and build resilience among healthcare providers. Participants will engage in interactive sessions led by experienced facilitators, including pediatric palliative care specialists, psychosocial clinicians, and communication experts. The workshop covers a range of topics, from breaking difficult news and discussing treatment options to addressing end-of-life care and bereavement support. Through role-playing exercises, case studies, and reflective discussions, attendees gain practical insights into tailoring communication to meet the unique needs of pediatric patients and their families. The workshop emphasizes a holistic approach, acknowledging the emotional, cultural, and ethical dimensions of pediatric palliative care communication. Attendees learn to establish trust, listen effectively, and collaborate with interdisciplinary teams to provide comprehensive and compassionate care. Strategies for age-appropriate communication and addressing the developmental needs of children are woven throughout the workshop, ensuring that healthcare professionals leave with a nuanced understanding of how to navigate challenging conversations with sensitivity and skill. Intended audience: Multi-disciplinary Clinicians Involved in Delivering Difficult News.

Title: The management of troublesome symptoms in PPC
Date: 16^th October 2024
Duration: 1-day (08.30 -16.30)
Coordinator: Poh Heng Chong
Co presenters: Ross Drake, Michelle Koh
Min Capacity: 30 pers. Max Capacity: 80 pers.
Description: Two to three challenging issues each, from both the oncology and non-oncology setting, will be discussed through case studies and evidence-based discussions. For inclusivity and comprehensiveness, a segment using a ‘rapid-fire’ quiz format will happen, where participants can bring up other difficult symptoms in their own practice for debate. Three special faculty assembled here bring knowledge and skills from UK/Europe, South East Asia and Australia/New Zealand. This goes to ensure topics discussed are culturally congruent and contextually relevant as much as possible. Participants will go away with more options in their therapeutic toolbox and definitely make many more friends! Intended audience: Physicians and nurses caring for seriously ill children within multi-D teams in various settings (home, hospital or hospice).

Title: Difficult choices: bioethical strategy
Date: 16^th October 2024
Duration: 1-day (08.30 -16.30)
Coordinator: Joana Mendes
Co presenters: Marie Friedel, Daniel Garros
Min Capacity: 30 pers.Max Capacity: 80 pers.
Description: Learning Objectives: Promote reflexive thinking about difficult choices in pediatric palliative care in a global perspective; Identify and test bioethical instruments (clinical decision-making instruments) that can help health care professionals deal with difficult choices;  Support a systemic approach about moral distress and how pediatric health care professionals can cope with difficult choices in pediatric palliative care. Topics: 1. Introduction to the workshop; 2. Difficult choices in pediatric palliative care; 3. Clinical ethical strategy- Decision making instruments; 4. Framing professional moral distress; 5. Case scenario discussion. Teaching Models: • Expositive • Interactive • Interdisciplinary discussions on clinical case scenario Outcomes: • Google forms evaluation • Take home messages • Portfolio on decision-making instruments. Intended audience: Multiprofessional