In response to popular demand, four pre-congress workshops on different themes of significant interest have been scheduled. The workshops, lead by eminent International paediatric palliative care experts will run simultaneously on Wednesday the 24th October 2018 from 8.30 to 16.30.
Please note that pre-conference workshops can only be booked on-line congress registration page in connection with the registration for the congress.
Participation in the pre-congress workshops will be limited to a minimum of 30 and a maximum of 80 participants, places will be allocated on a first come first-served basis.
Registration for the pre-congress workshops closes on the 14th October 2018.
Fees for Participants include:
- Attendance in the selected workshop
- Refreshments and lunch
| Pre-congress workshop topics | Duration | Course Directors | Cost until 3rd June 2018 | Cost from 4th June 2018 |
|---|---|---|---|---|
| Team Building and Leadership in Paediatric Palliative Care | 8hrs | Ann Goldman | € 120 | € 170 |
| Implementing Psychosocial Care, Including Sibling Engagement Care and Bereavement | 8hrs | Lori Wiener | € 120 | € 170 |
| Multimodal Treatment of Pain and Distressing Symptoms in Children with Intellectual and Physical Disabilities | 8hrs | Stefan Friedrichsdorf | € 120 | € 170 |
| Advanced Care Planning in Children – When, Who, How? | 8hrs | Justin Baker | € 120 | € 170 |
IT’S NOT POSSIBLE TO CHANGE PRE-CONGRESS WORKSHOP ON THE DAY OF THE CONGRESS
Title: Team Building and Leadership in Paediatric Palliative Care
Date: 24th October 2018
Duration: 1-day (08.30 -16.30)
Coordinator: Ann Goldman
Co presenters: Jan Aldridge, Danai Papadatou
Min Capacity: 30 pers.
Max Capacity: 80 pers.
Description: What makes a successful team and an inspiring leader? This workshop will be an opportunity to reflect on your own experiences and the challenges and rewards we all face working together, in teams, day to day. We aim to look at some of the ways members of teams work together and the functional and dysfunctional patterns that occur. We will examine the characteristics and styles of effective leaders and how we can identify our own strengths.Through discussion, group work and sharing the knowledge of the leaders and other participants we will explore ways to ways to cope, improve resilience and manage problems both as individuals and as teams and hopefully develop our skills for the future.
Title: Implementing Psychosocial Care, Including Sibling Engagement Care and Bereavement
Date: 24th October 2018
Duration: 1-day (08.30 -16.30)
Coordinator: Lori Wiener
Co presenters: Nancy Cincotta, Ndiaye Sokhna
Min Capacity: 30 pers. Max Capacity: 80 pers.
Description: This workshop will include an overview of expressive arts interventions such as art-based tools, creative writing, quilting, and other activities to support children, adolescents, and families impacted by serious illness and in the bereavement community. Topics covered will involve state-of-the art evidence-based interventions – child- and adolescent-focused interventions, relaxation, and mindfulness-based strategies, and interventions for parents. Strategies will be discussed that can be helpful to enhance coping and adjustment throughout the illness trajectory (on an individual, family, and group/community basis), to assist with procedural-related distress, and improve communication and legacy building at the end-of-life. Participants would have the opportunity to practice with several therapeutic tools and will learn how to discuss difficult conversations in a style that is non-hreatening and empowering. Interventions to enhance self-care will also be discussed. Through didactic and interactive learning, workshop participants will 1) become familiar with approaches to enhance coping and adjustment of children, adolescents, and caregivers; 2) learn about tools, interventions, and resources to facilitate end-of-life conversations; and 3) identify creative avenues of expression for work within one’s own practice.
Title: Multimodal Treatment of Pain and Distressing Symptoms in Children with Intellectual and Physical Disabilities
Date: 24th October 2018
Duration: 1-day (08.30 -16.30)
Coordinator: Stefan J. Friedrichsdorf
Co presenters: Kris Catrine, Julie Hauer
Min Capacity: 30 pers.
Max Capacity: 80 pers.
Description: More than eight million children would require specialized pediatric palliative care annually worldwide. The majority of them suffer from untreated pain and other unrelieved distressing symptoms. We will focus this workshop on children with intellectual and physical disabilities, especially on the large number of pediatric patients with progressive neurologic, metabolic or chromosomally based condition with impairment of the central nervous system. This workshop will include facilitated interactive lectures, case-studies, and small-group work. Objectives: Identify barriers to excellent pain and symptom control for children with impairment of the central nervous system; Evaluate effective multi-modal treatment approaches for advanced pain- and symptom management; Practice principles of pharmacological, rehabilitative and integrative (“non-pharmacological”) treatment approaches in case studies.
Title: Advanced Care Planning in Children – When, Who, How?
Date: 24th October 2018
Duration: 1-day (08.30 -16.30)
Coordinator: Justin Baker
Co presenters: Holly Spraker-Perlman, Jennifer Snaman
Min Capacity: 30 pers. Max Capacity: 80 pers.
Description: End of life care for pediatric patients can best be delivered when appropriate, goal-based plans are in place. An advanced care plan (ACP) is not just a document, rather an ongoing conversation to determine a family’s goals of care and current medical preferences. The goals of this seminar are to: 1) discuss barriers to pediatric advanced care planning from both healthcare and patient/parent perspectives; 2) introduce formal advance care planning documents that may guide conversations; 3) emphasize determining preferred healthcare services and location of death based on family goals, physician guidance and patient prognosis; 4) give clinicians precise language to use for ACP discussions; 5) demonstrate advanced communication techniques to facilitate conflict resolution during ACP. This seminar will include both interactive didactic and small group communication skills teaching sessions. Communication skills necessary to reframe goals of care, discuss life sustaining interventions, and plan medical care that fits with patient and family values and goals will be both modelled and practiced in this interactive module. Clinicians will have the opportunity to trial the learned communication skills with trained faculty, peers, and a bereaved parent educator in the communication skills portion of this seminar.
